HSE to extend Soliris drug to PNH & aHUS patients – Deering
4th February 2015 - Fine Gael Press Office
Fine Gael Carlow/ Kilkenny TD, Pat Deering, has today (Wednesday) welcomed confirmation from the HSE that they are to extend access to the drug Eculizumab (trading as Soliris), for patients with the conditions Paroxysmal Nocturnal Hemoglobinuria (PNH) and atypical Haemolytic Uraemic (aHUS).
“I have been advocating for this drug to be State funded ever since I heard the story of Ballinakill woman Mary Gorman who has PNH, a very rare and debilitating disease.
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