HSE to extend Soliris drug to PNH & aHUS patients – Deering
4th February 2015 - Fine Gael Press Office
Fine Gael Carlow/ Kilkenny TD, Pat Deering, has today (Wednesday) welcomed confirmation from the HSE that they are to extend access to the drug Eculizumab (trading as Soliris), for patients with the conditions Paroxysmal Nocturnal Hemoglobinuria (PNH) and atypical Haemolytic Uraemic (aHUS).
“I have been advocating for this drug to be State funded ever since I heard the story of Ballinakill woman Mary Gorman who has PNH, a very rare and debilitating disease.
Related news
Firefighters shouldn’t be forced to retire at 62 if they’re fit to serve – Kennelly
Firefighters who are medically and physically fit should be allowed to keep working until the State pension age, a Fine…
4th July 2026Statement from the Tánaiste Simon Harris on the passing of David Andrews
I was very saddened to learn of the passing of David Andrews, the former Fianna Fáil TD and Minister for…
30th June 2026The GPO needs to be a place for every child to visit in school - Geoghegan
The Government needs to be bold in its redevelopment of the GPO for future generations, a Fine Gael TD has…
23rd June 2026